I am sitting here tonight next to Jude. He has had a rough day...the second in a row.
His white blood cell count went way up yesterday, indicating an infection that still has yet to show itself. Nothing has grown on any of his cultures except our old friend Stenotrophomonas. It seems that that little bug really likes to live in Jude's lungs. Nobody is calling it pneumonia, however. It seems to just be colonizing. Please continue to pray for healing and protection from infection.
The skin breakdown on the PD catheter site has now been addressed by a wound care nurse, and so he is being treated for that. If it doesn't heal, then he will have to go back to the operating room to have the catheter moved to a different location. Please pray that the catheter site heals.
The plastic surgeon is hoping to take Jude back down to the OR to move the rotation flap and hopefully seal off the CSF leak. He will do that no sooner than a week from now. Please continue to pray for healing for his head.
Jude is back on peritoneal dialysis. With the fluid the dialysis has pulled off of him, he has now stopped peeing altogether. Please continue to pray for his kidneys to heal and to function well.
After our incredible day on Monday...when Jude did so well after the power wean on the ventilator...he started to have some problems and now he is receiving as much support on the vent as he was before. Please pray that Jude will be able to be weaned off the ventilator.
He continues to have really low platelets. We haven't gotten the tests back yet about that yet. Please pray that they will be able to diagnose the problem and that the doctors will have wisdom as to how to treat it.
Today, he has struggled with really low blood pressure. As I sit here, I am looking at really low numbers. I feel sick just looking at it. Early on, however, I was told to "look at my baby" instead of just the monitors or the MRIs or the charts. I love looking at him. Please pray that his blood pressure will stabilize and that we will trust the Lord with this.
We bought plane tickets today to go get Caleb and bring him back here for a week. We are super excited at the idea of seeing our big boy. Would you please pray that the Lord would bless our trip and the timing of it all? Brandon is going to fly out to get him on Halloween, and I am going to take him back a week later. That way, one of us will be here with Jude as well. Soooo excited and grateful.
Thanks so much to all of you who continue to read this blog and pray for our baby boy. We are so thankful to the Lord for the blessings He is pouring out on us in the midst of the biggest trial of our life. Thanks for being a part of that.
9 comments:
am praying up your requests. happy you will be with both your boys soon! asking God to help you see Him and know the Comforter is with you. love from colorado
Still praying. Sooo glad you will all be together soon. Take deep breaths, hug often and keep resting in God...who will sustain you. Love from maryland....
Love you guys. A suprise is coming in the mail. I think it will work out just great with Caleb's arrival. You guys are always on my mind.
Isaiah 65:20---There shall no more be in it an infant who lives but a few days, or an old man who dies prematurely; Jesus says Jude will live a long life. Believe!
Isaiah 65:23-24 ----They shall not labor in vain or bring forth children for sudden terror or calamity; for they shall be the descendants of the blessed of the Lord, and their offspring with them. And it shall be that before they call I will answer; and while they are yet speaking I will hear.
COntinuing to pray for you all VERY excited you will be seeing Caleb soon and he will get to see his baby brother!
You are all doing amazingly well - keep up the faith. When you're feeling low, know that many people are praying to lift you up!
Indiana Cousin Amy
Oh Mandy we are praying for your sweet little man. So excited you get to see your big boy. That will be so refreshing to you. I remember when they told me to "look at my baby". I found that so difficult because at times I didn't know what I was looking for. Bowens oxygen levels are in the 70s and 80s so he changes colors. At first it was so hard to know when he was changing. Now I think I get the hang of it. It is hard to clinically diagnose when you are only just learning medical things as well as learning what is "normal" for your baby. Thinking of you always. Bearing this with you. xoxoxox
Continuing to pray along with you! Love!
deep sigh. Praying for you guys.
mandy and brandon, i am praying right now... that you would "find rest, O your souls, in Christ alone." that God would allow your souls, bodies, and minds to be at rest in Him right now. enjoy time with sweet Caleb!!!!
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