Although Jude's surgery was successful, there have since been many complications. Many of those complications seemed to show up today.
Jude's aorta is narrrowed again. The purpose of his surgery was to remove a very narrow part of his aorta. That part was successful, but the suture (stitch) line has swollen now. And so the aorta has narrowed again...only this time he doesn't have the ductus anymore. This is concerning. It is hopefully temporary as it could just be inflammation as a result of surgery. Please pray for that part of his aorta to heal and to widen as it should. If not, he could have to go back into surgery.
He is having blood pressure issues. It has been low, and they had to put him on dopamine again. He has stabilized some tonight. Please pray that his heart would pump blood effectively in spite of everything.
His left lung collapsed again after surgery. They had to move it out of the way for the surgery, and it is now having problems. Please pray for his lung to inflate as it should...and for him to be able to get off the ventilator soon.
He has seemed too sedated today. They would like to see Jude more awake than he has been. We would too. Please pray for guidance for the doctors as they seek to keep him comfortable...yet with reasonable amount of awake time. It is a difficult balance.
His kidneys are struggling to function well. This was expected, which is in part why he is on peritoneal dialysis. He hasn't been peeing at all. Please pray for his kidneys to heal and function well.
There is some fear of infection still. Tonight, we found that the dressing around his femoral line (the line going into his bloodstream near his groin) was covered in some mystery black stuff. There was question as to whether it was poop (though it wasn't the color of his poop) or something else...possibly a leak. Poop would be very dangerous as far as infection is concerned. Please pray for his body to be infection free.
His head leaked a lot today. We have been told multiple times that it might not be CSF. It is hard not to believe it though. Please pray for his skin and dura to heal. His body should heal better now that he is off the PGE.
So, Jude is still really sick. It was expected that he would get more sick after he had his surgery. He seems to be even more sick, however, than what they were expecting. Please continue to pray for our little man's body as he recovers.
Please keep praying for us as well. With three nights in a row spent at the hospital, my sleep has been limited in both quality and quantity. The events of Friday and Saturday caught up with us today, and we started what turned out to be a difficult day on empty tanks. We need perspective and strength and perseverance. And, we need truth. If you have a Bible verse, quote or song you'd like to share with us, we would love it.
Thank you so much.