Wednesday, August 31, 2011

Thanks

Thank you
for the words shared and the tears shed after our last post.
It means so much to us that you care.
 As the Lord unveils the story of our littlest,
we are so thankful for the friends, family, and even the people we haven't met yet
that He has made such a sweet part of it.  :-)

I fell asleep tonight with my head down on Jude's bed,
and I am planning on heading to my own soon.
So, here is just a quick update on the day:
  
The Brain
His incision started seeping fluid today.  They tested it, and they confirmed it is spinal fluid and that there seems to be no infection.  I guess it happens in about 50% of brain surgeries, but it is strange that it is happening two weeks after the surgery.  They are watching for a fever, which would be followed up with a spinal tap to determine what kind of infection it would be.  Then, they would give him antibiotics.  Please pray that the seeping would cease and that his incision and his brain would continue to heal.

The Heart
The cardiologists and cardiac surgeons met today to discuss Jude and the next steps.  We were supposed to hear from them, but we did not.  So, hopefully tomorrow they will let us know what they are thinking as far as the date of surgery.  Please pray for wisdom for the doctors and that we would trust the Lord as we wait on Him.

The Lung
It is still looking better.  They will not be taking him off the ventilator until sometime after the next surgery.  Please pray that his respiratory system would continue to improve.  I met a little girl today with Down Syndrome who is on oxygen after her surgery for an AV Canal defect.  So, I don't know what things will look like for Jude after this surgery.
  
The Kidneys
His creatnine level is still at 1.5.  That number is a measure of his kidney function, and 0.4 is about where it should be at.  Please pray that the number would go down to an acceptable level.  We're still not sure how it's going to affect his surgery.  They really don't want to cut off blood flow to his kidneys while they're functioning this way.

The Loved Boy in Illinois
I stole this pic from the blog of my sister-in-law, Julia.  Our sweet kid is the one in the brown shirt with the orange stripe.  He is having pretty much the time of his life in Illinois with his cousins...all seven of them...and his two aunts and two uncles.  We got to skype with him today, and we pretty much just got a bunch of crazy, silly faces from him.  We're so grateful he is doing so well.


Yes, LORD, walking in the way of your laws,
   we wait for you;
your name and renown
   are the desire of our hearts.

Isaiah 26:8

4 comments:

Whitney said...

I loved getting to talk to Caleb in church on Sunday. Praying for your sweet Jude and your family!

Whitney (from BCC in IL)

Angela said...

I loved being able to pray specifically for Jude with my kids this morning. Each of them prayed for a different request that you listed. Thank you for keeping us updated and allowing us to join you on this journey. We love you!

jojo1979 said...

We are continueing to pray specifically for the prayer requests daily. The hand of God is with your family and the testimony that you are having all across the world through this blog is amazing. Plus the living testimony that you have everyday with the hospital staff about where your faith comes from. May God continue to shine through in this time of uncertainty. I have two very good friends who both had children who spent a lot of time in NICU wards and pediatric care units. The testimony that they had to the staff and the other parents was amazing and I am sure you both are doing the same. God is going to use this for His Glory. Much love my dear friend.

Abigail said...

It is great to see that Caleb is doing well and has lots of play mates! We continue to pray for baby Jude and the doctors and both of you. We know God is providing you with His strength as He is with you right now and baby Jude!

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