We are just waking up after staying up late beside our sweet little guy. We are soon to get update about how the rest of his night went. I was there 'til four and Brandon 'til 1:30. He is having problems keeping his blood pressure in a good place. It was often way too low or sometimes too high. They are administering Dopamine to keep it where it needs to be, and the nurse had to be very vigilant last night. They are also watching his oxygen levels as they are fluctuating a lot. They don't know what it means yet, but then the nurses don't usually tell us what they think. That's what the doctors do, and I am sure we'll be meeting with them sometime soon.
Jude is scheduled to get another MRI done today. They should know more then.
We are getting ready to leave the hospital today. We have been staying in a great little family room here, and other families need it. We don't know where we're going next, but our hotel room is still available. We want to be closer though.
Please pray that his levels stabilize. Please pray that the MRI shows good things. The plan for his brain at this point is to wait and watch the three other areas of bleeding to see whether they are inside the brain or outside...and then they'll know how to proceed. The blood should get reabsorbed with time, and it will present a clearer picture.
We are also hoping to move back to Presbyterian as soon as he has recovered from this surgery. It will be there that they will perform the surgery on the coarctation. It seems that the problems with the oxygen levels have something to do with that...because the monitor on his foot that is measuring how much oxygen the lower part of his body is getting (hindered by the narrowing of his aorta...the coarc) is acting not too happy. But, I am not a doctor. Hopefully we'll know more today.
We are going to get Caleb back today...since we'll be able to live with him again. We are looking forward to it, but I am also a little apprehensive due to the fact he can't come here and we can't be here together whenever one of us is with him. We have people who can watch him, but it will be more of a challenge to manage all of that.