A Prayer Request

Hi friends.  I hope you all had a great weekend.

I know that most of you who have found my blog found it because you were praying for us.  Thank you.  There still is no way to fully express my gratitude.  Tonight, I wanted to ask you to pray for my uncle, Ron, who is going to begin radiation and chemo tomorrow for Stage 3 Esophageal Cancer.
Please pray that God would draw my family near to Him through all this. Pray that we would all know His love, peace and comfort as we look to Him for healing.  I am so thankful that prayer is not bound by geography, and that we have a God who asks us to "Cast all your anxiety on Him because He cares for you (1 Peter 5:7)." 

Thank you so very much!

Andrea

Today my beautiful cousin Andrea underwent surgery for a second time to replace the large portion of her skull crushed by the Sugarland stage collapse.

Would you please pray for her?

Please pray against infection and that the Lord would continue to change lives through hers.  

I am so proud of you, Andrea...

and so grateful to call you family.

You are so loved.

Edited to Add:
You can learn more about the stage collapse in this article on CNN today.
You can learn more about Andrea's story in this video that was on CNN today as well.

Do you not know?  Have you not heard?

The LORD is the everlasting God, the Creator of the ends of the earth.
He will not grow tired or weary, and his understanding no one can fathom.
He gives strength to the weary and increases the power of the weak.

Even youths grow tired and weary,

and young men stumble and fall;

but those who hope in the LORD will renew their strength.
They will soar on wings like eagles;

they will run and not grow weary,
they will walk and not be faint. 

Isaiah 40:28-31

Fight for Feuille

I realize that my blog has been full of prayer requests lately, but I fully believe in God's power to heal.  And, so I am asking you to ask God to heal another friend.  Robert Feuille was a student here at NMSU, then an intern here with Cru, and now a graphic designer/photographer in El Paso.  Lately, however, his full-time job has been fighting testicular cancer.

After a surgery in which part of his liver and many lymph nodes were removed, Robert and his wife Aimee got bad news tonight.  The surgery was a failure, and the doctors have given him a 10% chance with another round of chemo.  Robert and Aimee have two little girls and a baby boy, Egan, who was born just weeks ago.  Please, please pray for them.  You can read more about his fight here or here.

"Praise be to the Lord, to God our Savior, who daily bears our burdens."   Psalm 68:19

More Ellie Updates

Update 10.27.09
Ellie is home now! She did end up having a permanent shunt placed to allow for drainage of the fluid in her brain. Now, she is home and the Lively family is adjusting to a new life with many challenges ahead. Please keep praying for Peter and Alana as they take care of Ellie and Katie...and each other. Thanks so much!


Again, please pray for Ellie Lively. God has been good and has answered prayer. Please continue to pray for our friends.

From Peter tonight:

Hello friends and family,

Wanted to give everyone an update. We're still very thankful for the returned blood flow to the right side of her brain, but our emotions get tossed back and forth as it seems with every two steps forward there are one or two steps back.

Ellie's been having seizures with some regularity, including four seizures Tuesday night. They could be caused by brain damage leftover from her stroke or possibly her sodium levels. Ellie's sodium (salt) levels have been very inconsistent, mostly low if not very low. They're not sure why, speculating it could be because of brain injury, could be because her system's adjusted for all of the fluids being pumped into her, or maybe because of a thyroid issue, or maybe it's metabollical, or all of the above. They don't really know and are doing a lot of tests. If we don't get a good handle on it, Ellie will continue to have seizures, it could damage her brain further, and she could go into a coma. Sodium is very important for nerve conduction, and could severely limit her development, to say the least.

Ellie's been throwing up last night and this morning, which is another symptom of low sodium. Whenever her eyes are open she always has a kind of 'panicked' look on her face, and she doesn't track extremely well with her eyes (but at least she's opening her eyes). She doesn't have the breathing tube anymore, which is great, or as many arterial lines.

The fluid from her brain is still draining, and hopefully we'll see the last of the blood left over from the hemohrrage out of her brain. The hope is that her head will be able to naturally absorb fluids so that she won't continue to have abnormal pressure placed on her brain. If this doesn't happen then a permanent drain or shunt will have to placed in her head, which will make her very prone to infections, could further hurt her brain development, and may not succeed in it's purpose anyway (though, we have many of the best pediatric surgeons here that should really help improve probable success).

We can't thank everyone enough for praying for us. We've sensed God's presence and voice with us through all of this. Two days ago I was having a difficult emotional time and was trying to read some psalms to Ellie, while wondering where God was. Some nurses came in and after they left I felt like I 'should' read another psalm to Ellie, but I didn't want to. I didn't feel like it. Right then I sensed that God said, "That's ok, you don't have to." Such understanding! I broke down, experiencing the reality of a God who 'sees' people in their distress, like the passage about Hagar in Genesis 16. I felt assurance that God is seeing us while we're in this nightmare, that He cares and He's 'seeing' us through it. After this I wanted to read a psalm to Ellie.

We don't know where all of this will lead, but God is still good. Please continue to pray for us. The prayers are being heard. Sometime early next week the neuro-surgeons will order another CT scan and evaluate how her brain is doing, probably determine if she needs the permanent shunt. Please pray that she won't need it, that her sodium will come under control, that her brain will continue to be heal, and that someday she'll be able to run around with her sister.

With love,

Peter and Alana


From Peter on Monday:

Hello everyone,

As many of you have heard, Alana and I received some great news about Ellie today. If you'll remember, the doctors had told us the aneurysm had disrupted the blood flow in her right cerebral artery, blood that was supposed to be completely stopped by the coil embolism Dr. Kumpe inserted. This stoppage of the blood flow would continue to severely damage the right side of her brain, basically causing it to die. This loss would greatly decrease if not paralyze her ability to move the left side of her body.

Well, we got back the results from an MRI taken Friday and the results were shocking. Ellie has blood flowing in those arteries! The doctors were very surprised. They had been speaking about the right side of her brain becoming necrotic as a past and finished event. However, Ellie has been moving her left arm and leg consistently (albeit, with less strength than the right) and it was never understood exactly how until now. Somehow, through something called collateral blood flow, blood has gone around the aneurysm and the coils, somehow, and found it's way to the affected arteries.

This is almost too incredible for Alana and I to believe. We had come to accept that those arteries and the associated brain tissue were a lost cause. We've been wrestling with this 'fact', wondering what kind of life Ellie would have should she survive all of this. We were glad she was alive but sad for the horrible damage done to her brain. Now, it seems, God had other ideas.

She still needs much prayer for continued restoration of her brain. Also, they've inserted a drain in her head to relieve the fluid build-up, especially the blood from the aneurysm burst. They gave her a powerful blood thinner to break up the blood clots left over from the hemorrhage. The thinner is so powerful they almost never give it to children as they're not sure what it does to them. But it was determined that the pressure in her brain was becoming too great.

Please pray that the drain will do its job, that all of the blood from the aneurysm would leave her brain, and that her brain's natural fluid equilibrium would be restored. This way, she won't need a permanent drain placed in her skull which would bring with it a whole other set of problems..

Again, thank you so much for praying for us and our little daughter. I don't think this would have happened without the sort of prayer covering we've enjoyed. God would have been good regardless of the new MRI's revelations, but we're so thankful that He answered our prayers with a miracle today. Incredible! It is so thrilling to get good news.

As always, we or others in the know will keep you posted as news comes. God bless you!

Humbled,

Peter and Alana Lively

Ellie Updates: PLEASE PRAY

Yesterday from Peter:
(though it seems like it's been much longer than that)

Dear Family and Friends,

Our precious 6 week old daughter, Ellie, has a serious medical problem and is currently hospitalized in the pediatric intensive care unit at Denver Children's Hospital. Early Wednesday morning, she started to screech inconsolably. She wouldn't eat, was very pale, started moving her eyes in a very panicked and unfocused manner, and (though, we didn't know it at the time) she had a few seizures. We took her to the hospital where it was discovered her skull and brain were full of fluid creating extreme pressure.

Many guesses were made as to what was happening. It was discovered, after a CAT scan that Ellie had had a major episode of bleeding into the right side of her brain. A later MRI and MRA revealed that the bleeding was caused by an aneurysm in the right cerebral artery. This aneurysm was present at birth and a weakness in the wall of the aneurysm caused the bleeding. The hemorrhage into Ellie's brain has resulted in some brain damage, probably permanently.

Ellie is currently not conscious and is at risk for another bleeding episode, which would probably be fatal. The doctors and nurses have been very kind and helpful. They are watching her closely and are exploring all possible avenues of treatment, but the outlook does not appear to be good at this time. One option is to send a probe up her artery that would place a titaniumEndovascular coil directly into the aneurysm hopefully stopping blood flow to it. The other option is to clip the artery effectively stopping all blood flow to that part of the brain. Both procedures are extremely risky, especially given her age and condition, but we don't have many options.They won't be done until Monday.

Three weeks ago she had to go to the hospital after showing similar issues, but it was never determined what was wrong. It was guessed that she had an infection of some sort. She got better and was released. We had her for a week believing things were returning to normal. Four days ago, Ellie was lying on her Baby Einstein mat smiling, happily watching her sister run everywhere. Feels likes months ago.

Please pray for Ellie. She needs a miracle. Thank you for your concern and your valued friendship and support.

Peter and Alana Lively



Tonight from Peter:
Hello Family and Friends,

Wanted to give everyone a quick update on Ellie. She's had a relatively good day, no major changes. She's been stable, almost like she's preparing for tomorrow, which could be a very big day.

We've all been anxiously awaiting the arrival of reportedly Dr. David Kumpe, a very well-respected professor of Radiology. Apparently, he is the expert when it comes to situations like Ellie's; there isn't anyone better. His clinical interests areStroke Therapy, Cerebral Aneurysms, Central Vascular Malformations; everything Ellie's dealing with. He hasn't been able to help until now because he's been on a trip. He'll be the one to operate on Ellie, either tomorrow or Tuesday.

Please pray that:
Ellie will continue to stay stable (which means no more seizures, good vitals, no bleeding, etc) so she can go into surgery as planned.
Dr. Kumpe can get caught up to speed on Ellie's condition. We've learned that this episode is very rare, someone getting an aneurysm this early in life and not be a preemie, which would usually be part of the reason. There may be 20 or 30 cases like it on record.
Dr. Kumpe would make the most appropriate decision on how to proceed. I had mentioned the titanium coil embyllism being placed directly into the aneurysm or a clip cutting off the affected artery entirely. I'd prefer the first option because it still gives Ellie a chance of saving the artery and, therefore, the right side of her brain which the artery feeds. However, Dr. Kumpe is the expert. His opinion will be huge.
The procedure, whichever one it is, will go well. Dr. Kompe will have the team he needs in place (which is complicated by the Labor Day weekend). Pray that Ellie survives, that it takes care of the aneurysm, and that her brain would begin a healing process.
As far as her brain, please do pray that it will fully heal either quickly or eventually. Most of the doctors here believe Ellie has probably suffered moderate to severe brain damage that will never heal, especially to the right side of the brain. I'm not ready to believe that yet. Please pray for a miracle.
Pray for Alana and I. If tomorrow is the day Ellie goes into surgery (it may be Tuesday because Dr. Kumpe might need more time) the Alana and I may need to make some difficult decisions about Ellie's treatment. We want them to do whatever it takes to save her life. That's our decision, which may mean she could survive but, prognosis-wise, battle long term brain related difficulties. Grappling with the possible ramifications adds another level of stress to a situation that's been nothing less than a nightmare. Depending upon the outcome of the procedure, we may have many decisions to make none of which will be easy or desired. We'll need wisdom, strength, and protection from the evil one who we think has been attacking us and our family severely in this.
The way our days have worked, generally, is that we wake up angry and in denial, we talk with the doctors and become discouraged, our family or friends come over and cheer us up, we see that not much has changed with Ellie (for the worse, anyway), and we feel a little better. This was especially true today. The start of the day was difficult, but then pastors Michael and Brenda Walker of Church in the City, and Alana's uncle Jim and Aunt Reenie, who are in ministry, prayed for us and Ellie. Alana and I both felt a peace afterwards that we hadn't had yet through this. Nothing had changed with Ellie, so we can't explain the peace, but it was there nonetheless. It must be from God.

We're so grateful to have all of you praying for us and Ellie. It's an incredible blessing. The magnitude of the support has been overwhelming. Thank you!

We'll let you all know how it goes.

Peter and Alana Lively

Please pray for our friends...

...Alana and Peter.  Their new little baby is in the hospital in critical condition.  Here is an update from our friend, Angela:

Dear Friends of Peter and Alana...Please pray for their baby Ellie Marie. She is in the hospital, having fluid drained off of her brain right now. I just talked to Peter. Ellie is in critical condition. They are hoping that the drained fluid will relieve pressure. They will do a culture to try to find out what is causing the swelling, but they won't know anything for 36-72 hours. Peter asked me to ask you all to pray. I will keep you updated as I find out more...

And then a more recent update from Peter: 

Thank you so much for praying for us. We had no wish to return to the hospital this soon, but it's very serious. She bleeding from the interior of her brain and they're not sure why. It could be an infection of some sort or perhaps something else. As Angela mentioned they're doing several cultures to determine that. She's also having problem with her blood clotting. Our heads are spinning. That's all we know for now.

Please pray for them.  Pray for faith for them...for strength...and for Ellie's healing. Pray too for their little girl, Kate, who is Caleb's age and has a birthday two days after his.  Thanks so much.  

Welcome Baby Israel!

Our good friends and fellow NMSU Cru staff, Vince and Holly, welcomed their sweet little boy, Israel, into the world yesterday.  He is so super cute, and we are really excited that he is here.  We have been waiting a while.  

Izzy was born with an omphalocele, meaning his abdominal cavity didn't develop normally, and some of his intestines are in a sac on the outside of his body.  Yesterday, they learned that some of his liver is in the omphalocele as well...that was a surprise.  He is having surgery on Monday, so please pray for his healing. 

Check out her blog for more info.  

Taylor Meets her Sister

As most of you know, the Washburns are some of our closest friends.  They are on our staff team, and it is pretty impossible to imagine life here without them. 

Liz gave birth to Aliana Grace seven weeks ago.  Their first daughter, Taylor, is two months older than Caleb and is his very best friend.  Because she had stayed with us when her new sister was born, we were there when Ali met her big sister.  Although Taylor had a pretty emotionally difficult time at first, she soon warmed up to the little person who was no longer in Mommy's belly.  It was such a sweet scene, and it was a blessing to be there. 

As I mentioned, this happened almost two months ago.  Today, I got to take some more pictures of that sweet little girl that I will post soon.  

Hopefully it won't be too long before we get to see similar pictures of Baby Israel Hoppe who was born this afternoon.  Please pray for him and the challenges he has ahead of him with the surgery for his omphalocele and other possible complications...and for Holly and Vince, our good friends.  For more info, check out Holly's blog.  Their faith is such an encouragement to me. 

Another Brandon Update

Okay, so my update the other day wasn't exactly true.  I realized yesterday that Brandon's leg is still bothering him quite a bit actually;  he just isn't complaining about it.  

So, I wanted to clarify.  Please pray for him.  

Thanks.  We love you guys. 

The Global Food Crisis

As the cost of food has increased, the world's poor are the most affected.  The rise in the price of food due to gas prices, higher demand, etc., has caused a crisis among those living in poverty. Please check out Compassion's website for more information about what we can do to help ease the crisis...the first and foremost being prayer.   

"Is not this the kind of fasting I have chosen: to loose the chains of injustice and untie the cords of the yoke, to set the oppressed free and break every yoke?  Is it not to share your food with the hungry and to provide the poor wanderer with shelter --when you see the naked, to clothe him, and not to turn away from your own flesh and blood?"

Isaiah 58:6-7

Please pray...

After the triathlon, Brandon started feeling a strong pain in his calf. A few days after making an appointment to get it checked out, he almost cancelled it. The pain was feeling a lot better, and it seemed like the visit would end up being a waste of money. He ended up deciding last minute to go...a decision that was definitely led by the Lord.

Brandon has a DVT (deep vein thrombosis). It is a blood clot. The doctor was really surprised at the ultrasound results, and he put him on blood thinners that night. Brandon has been giving himself shots twice daily. He will be taking the pills for at least three months.

We're really, really grateful for the diagnosis. It can be very dangerous if left untreated, and many doctors don't recognize blood clots when they see them in someone as young and active as Brandon.

Please pray for my husband to get better. We have another appointment at the end of the week to see how his blood is clotting...or its thinness level...or something along those lines. It will determine a lot.

We are now trying to determine our summer plans...and we ask you to pray for that as well. We were planning on helping staff the Myrtle Beach summer project on the 27th, but now we don't know if we can anymore. The doctor advised us against the travel...both the 3-4 day road trip we were planning to get out there and the multiple plane trips that would be necessary because Brandon can't be in a car for that long. He also has to get checked out weekly by our doctor.

Writing out all the reasons why Myrtle isn't a good idea seems to make it obvious what we need to do. We would just be so sad not to get to spend the summer with the other amazing staff (and students) who will be there. I was getting really excited to see what God had in store...and much of my family is out there as well.

So, again, please pray for my husband and his health...as well as for guidance for us. God is amazingly great at answering prayer. THANKS!

These are a few random family shots...including Caleb pre- and post-haircut. In the bottom picture, he was giving rides to his koala bear, brown bear, and rabbit on his fire engine. He then took a rest on my lap. I love when he does that.