I got to hold our little boy again tonight. :-) When I held him, his incision started to leak cerebral spinal fluid (CSF) again. He had coughed during the transition, and that seems to trigger it. The neurosurgeon came and put some more dermabond (glue) on the incision. If this doesn't work, they will likely put in something called a lumbar drain. The lumbar drain, as I understand it, is a temporary catheter in his spine that will relieve some of the pressure of the CSF and allow the skin at the incision site to heal.
We can't get back to Presbyterian for his heart surgery until this resolves. Please pray for a complete healing for his incision. The poor little guy has already had so much dermabond. In fact, his ear even ended up glued to itself at some point.
I would really love to not need to see the neurosurgeons anymore. Jude agrees.
Thanks for praying. I am going to go hold our sweet baby now. :-)
I don't know you, and only stumbled across your blog shortly after Jude's birth, but I've been praying for Jude every day. I will pray very specifically for the issue of the incision. There are so many people lifting your sweet little boy up in prayer. I hope you can find encouragement in that. You and your husband remain in my prayers as well.
ReplyDeleteJude is such a handsome little lad...I so enjoy reading your daily updates and soooo glad you are getting to hold your precious little one more! Many lifting you all up in prayer to our faithful and loving God.
ReplyDeleteFelicidades por tus TRES semanas pequeño eres un guerrero!!!
ReplyDeleteAmigos, en casa los tenemos presentes todos los dias, los recordamos con mucho cariño y seguimos orando.
DLB :)